{Where have I been?}

I know it has been so long! I'm so sorry! A lot has happened the last few months. First on a good note my symptoms have gotten better. The pain is more manageable and physical therapy is working wonders. Now I do have some bad days but overall it has been much better! I was afraid when the snow started my condition would worsen. Everything I read talks about it getting worse with cooler weather. Honestly I don't feel that is the case. I haven't noticed it getting worse but it could also be I am constantly layered!

In November we traveled to Houston to see a world-renowned specialist for Lupus. It was by the grace of God that they accommodated the dates to the time we would be there for thanksgiving. I was so fortunate since their normal time to see him is scheduling about a year in advance!! The nurse was so sweet and called me at the first cancellation (I was 43 in line and she moved me up) seriously an angel! I am so thankful for her! The appointment was wonderful! He took all the time I needed to answer my million questions! And we left feeling confident with my Illness.

We discussed the pros and cons of getting on the medicines. And for now we all agreed I would continue to tackle this disease with Physical Therapy, Vitamins, and healthy lifestyle. I WAS thrilled!! I go back next month for my regular blood work and depending on the "numbers" I can continue this way unless they change for the worse or I can't tolerate the pain.

We also discussed the possibility of adding another baby to our family. He was very confident that it would be something we could definitely do, but also was very clear on the risks. Mainly risk on me not the baby as well of a high chance of miscarriage even after 12 weeks. So for now we are not sure what we will do, but are putting it in the hands of God.

The last month has been an extreme blessing. I only had one "flare" where I could barely move my hips and lower body. But with pt and Motrin I was feeling better in a week. We were blessed to have my in laws in town at that time they were a huge help! My husband also has gone above and beyond anything I could imagine. He is my rock, I love him more than he will ever know...

For now I am taking it day by day I am happy where things are and I must say this has made me a much better parent. I treasure every day with my family knowing if this turns for the worse (which may never happen) I can loose them in an instant. I am just so thankful. I have had the most loving support from everyone..Thank you!

Will be updating more soon,

Flying Seal